Johns Creek community helps boy with rare form of epilepsy - CBS46 News

Johns Creek community helps boy with rare form of epilepsy

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JOHNS CREEK, GA (CBS46) -

The Sugar Mill community in Johns Creek is rallying behind an energetic fifth grader battling a rare form of epilepsy.

In just a few days, 9-year-old Tyler Lillard is set to have surgery not currently covered by his family's insurance.

Friends and neighbors are hoping to raise $50,000 to help the family pay for it.

Falcons football star Jason Snelling, who has a less severe form of epilepsy, heard Tyler's story and decided to lend his name and time to help.

Tyler and his friends are hoping to score a touchdown with Wednesday's fundraiser.

"Since seizures are kind of stopping me, I'm trying to get over them and not have them anymore," said Tyler.

Tina Lillard is thrilled to see so many of her neighbors and friends, many whom she's only know for short while, care enough to help.

"Not knowing when a seizure is going to come is really hard for him. That's the most. They come at anytime. They come at any moment," said Lillard.

Lillard refuses to play the role of over protective mom.

"He wrestles. He does chess team. He does Lego's club. He does all that because he needs to be normal," Lillard said.

In some cases, when Tyler feels better than normal, he has more than a dozen ribbons from wrestling meets.

"I like to wrestling because it's all about the take down and then you can have fun all over," said Tyler.

The carnival style event will be held inside and outside of the club house at the Sugar Mill subdivision on Sweet Creek Road in Johns Creek. It's from 4 p.m. to 9 p.m. with a $10 admission fee.

Tina Lillard writes a blog allowing people to follow Tyler's Epilepsy Journey.

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