Family urges lawmakers to legalize medical marijuana - CBS46 News

Family urges lawmakers to legalize medical marijuana

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ATLANTA (CBS46) -

Several times a day, every day, Melinda Powell and Jonathan Jiles flip on a machine to clear their son Kason's airways, just so he can breathe.

Kason, a little more than 3 months old, was born with Ohtahara syndrome - a rare form of epilepsy that plagues him with seizures.

"On an average day it's about 10. A bad day is about 25. A real bad day is about 75. It's terrifying. It's horrifying to watch. It's just painful," said Jiles, the baby's father.

Kason cannot feed from his mom or drink from a bottle.

"He's not able to take anything by mouth," said Powell, Kason's mother.

Kason instead gets all of his nutrition through a feeding tube.

"It's just very hurtful to know he's feeling that, as young as he his," Powell said.

The couple has to give Kason seven medications each day.

"It's slowing him down," Powell said.

Kason loudly wheezes as he gasps for air and each day could be his last.

"It's very scary not knowing what's going to happen," Powell said. 

The couple believes medical marijuana could give their son a chance to survive.

"We just know, statistically, the odds are in his favor," Jiles said.

Lawmakers next week are scheduled to debate a bill that would legalize medical marijuana only in pill or oil-based form and only for patients who suffer from seizures.

Powell and Jiles urged lawmakers to act fast.

"That's our hope, for a miracle to get this passed this session. We can't just sit here and let our son die," Jiles said.

The couple said they would consider moving to Colorado where medical marijuana is legal, but they cannot afford it.

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